Kids with “Sunflower Syndrome”: Mislabeled, Misdiagnosed, Misunderstood

What Missouri family learned from their research came as a shock

(KEVIN JENKINS, DAILY JOURNAL) A family that pulled up stakes in the big city to live and work on a farm is sharing how to live a healthier lifestyle while proclaiming their down-to-earth Christian faith with others.

PHOTO: Sunflower Syndrome (Self Induced Photosensitive Epilepsy), Facebook

Keith and Sheri G., along with their two children, 15-year-old Dylan and 13-year-old Kailyn, have named the acreage they purchased Liberty Mission Farms.

The family recently opened a farm store that sells garden produce, poultry, eggs, honey, baked goods, handcrafted jams and personal care products such as soaps and goat’s milk lotions.

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“We have lived in four states and always in a large city,” said Sheri, as she pointed at several tables filled with fruits, vegetables and other natural and homemade items for sale in the small store.

“Until just a few years ago we felt called to leave the comfort of Keith’s job as senior vice president at a large financial firm in St. Louis to become farmers. People thought we must be crazy, but this is where the Lord has led us and it’s been an amazing journey.”

It’s a journey Sheri said began seven years ago when Kailyn, then only six years old, was incorrectly diagnosed with epilepsy.

“It was our desire to find a means to help her when no neurologists could find answers for us,” she said. “We finally learned through research of our own that Kailyn has a rare disorder called ‘Sunflower Syndrome.’ Through meeting many other families, we began to learn about the causes and possible solutions for this and many other health issues we see today.”  READ FULL ARTICLE AT DAILYJOURNAL.COM