Gaten Matarazzo talks about his genetic disorder
| What’s up with that adorable kid in the FIOS ads?
| Huffington Post – Verizon’s young star, Gaten Matarazzo, has no problem discussing his genetic disorder.
The teen actor appeared on “The Jonathan Ross Show” with some of his fellow child stars.
Matarazzo opened up about his rare disorder, known as cleidocranial dysplasia, to try to raise awareness about the condition.
“It’s a condition where you’re born without your collar bones — I don’t have any,” Matarazzo explained.
“It affects your facial growth, your skull growth… it affects your teeth… that’s why I don’t have any, these are fake, right here.”
As Matarazzo explained, cleidocranial dysplasia (CCD) is a rare disorder that affects the growth of bones and teeth.
The severity of the disorder varies from person to person. Those who have underdeveloped or no collarbones may have “narrow and sloping” shoulders or be three to six inches shorter than average.
As for teeth, those with the disorder may experience a delayed loss of baby teeth or have misaligned teeth or jaw. While some people with CCD may require surgery, Matarazzo says he only has a mild case.
“A lot of people have it much worse than I do,” he told host Jonathan Ross. “And I feel like putting it into the show is really raising awareness for it.”
“I just wanted to raise awareness for it and let people know it’s not something they should be afraid of showing.”
The teen has made it his business to spread awareness about the rare condition.
“I get a lot of messages and emails from people who have the condition, saying that it really helps them come out of their shells a little bit,” Matarazzo told a reporter. “They say that this is the first time they’ve heard of it outside of the doctor’s office, it made them feel really good and it inspired them.” Read the full story at Huffington Post.
From Wikipedia, the free encyclopedia
Gaten Matarazzo at the 2017 San Diego Comic-Con | Photo by Gage Skidmore
- Born Gaten John Matarazzo III
- September 8, 2002 (age 15)
- Little Egg Harbor Township, New Jersey, U.S.
- Occupation Actor
- Years active 2011–present
Gaten John Matarazzo III is an American actor. He began his career on the Broadway stage as Benjamin in Priscilla, Queen of the Desert, and as Gavroche in Les Misérables. He currently stars as Dustin Henderson in the Netflix science-fiction drama series Stranger Things.
Matarazzo was born in Little Egg Harbor Township, New Jersey. He has an older sister and a younger brother. Gaten has cleidocranial dysplasia, a trait he shares with his Stranger Things character. He uses dentures as a result of his condition, and uses his fame to raise awareness about it.
Matarazzo uses his platform to raise awareness of cleidocranial dysostosis and fundraise for CCD Smiles, an organization that helps cover costs of oral surgeries for those with cleidocranial dysostosis.
Matarazzo has also started a line of T-shirts whose proceeds will go to CCD Smiles. On his social media sites, Matarazzo actively notifies his followers of how to donate to CCD Smiles and different events he will participate in. Recently, his sister also started a Facebook campaign to raise money for the organization.